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Lupus Foundation of America

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The Lupus Foundation of America is a non-profit charitable health organization that supports individuals suffering from the disease. They have many programs that include research, advocacy and education of the general public.

The mission of the Lupus Foundation of America is as follows:

  • Shine a light on this medically underserved disease
  • Accelerate the pace of medical research on lupus
  • Build support for the needs of those affected by lupus
  • Elevate lupus to a place of prominence on the nation’s health care agenda

Lupus is a chronic inflammatory disease that affects men, women and children. There is no known cause of the disease, and currently there is no cure. While the "butterfly rash" on the face is an indicator of the disease, it is not the only symptom. In addition, not everyone who has lupus has this rash on their face. The following are some of the most common symptoms according to the LFA:

  • Extreme fatigue (tiredness)
  • Headaches
  • Painful or swollen joints
  • Fever
  • Anemia (low numbers of red blood cells or hemoglobin, or low total blood volume)
  • Swelling (edema) in feet, legs, hands, and/or around eyes
  • Pain in chest on deep breathing (pleurisy)
  • Butterfly-shaped rash across cheeks and nose
  • Sun- or light-sensitivity (photosensitivity)
  • Hair loss
  • Abnormal blood clotting
  • Fingers turning white and/or blue when cold (Raynaud’s phenomenon)
  • Mouth or nose ulcers

Website: http://www.lupus.org

Lupus Foundation of America

  • 2000 L Street, N.W., Suite 410
  • Washington, DC 20036

Phone: 202-349-1155

Fax: 202-349-1156

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